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Raspunsuri - Pagina 13
anangel_lexi spune:
quote:
Originally posted by madalina horsa
Vroiam sa atrag atentia ca acolo au ramas conturile vechi, nu cele IBAN.
Madalina
Da, am remarcat si eu chestia asta, dar din pacate prea tarziu. Asa ca Andrada, te rog, modifica tu datele refritoare la conturi. Multumesc,
Alexandra
Sometimes I still lose my mind/ when life is cruel and unkind/ but it's when I suffer that I learn/in a repenting heart love will burn/oh I'm/ thanking blessed Mary for light divine
Andrada spune:
Scrieti va rog un alt mesaj cu conturile bune ca sa pot transmite informatia corect.
Va multumesc,
Andrada
L’amore che move il sole e l’altre stelle. Dante
Iubirea misca soarele si celelalte stele
madalina horsa spune:
“Mum, if God is good, why does it have to hurt me?”
It is Paul’s question, a 7 years old boy. He knows he has a problem with his muscles, he knows he cannot run, he knows he soon gets tired and that he cannot climb the stairs by himself anymore…
But he does not know that the lack of money will condemn him to a wheelchair, and then to death. If he is patient, he shall have 20 years in front of him…
In the National Medical University Cell Therapy Clinic, in Kiev, Paul had the first part of a treatment wich, according to the doctors, guarantee the stopping of the illness evolution. The cost of this first part was 15.000 euro, but Paul went there with only 7000 euro. The rest must be payed in December, plus the 10.000 euro for the second part.
Latest news in short:
Madalina, a family friend, says:
They are in Bucharest, Paul goes to school and he is happy. There is a problem with the transportation; he goes to school by bus and tram but I hope he will do fine.
THE BIG PROBLEM is that there is still not enough money gathered in his account. As far as I know, the second part of the treatment will take place in December. The old debt is of Euro 7,500 and for the second part of the treatment they need another Euro 10,000.
You can also find an article about Paul on the website 121.ro
Paul’s story was also published in “Jurnalul National” newspaper:
http://www.jurnalul.ro/modules.php?op=modload&name=News&file=article&sid=7158
http://www.jurnalul.ro/modules.php?op=modload&name=News&file=article&sid=11164
A child’s gait has been stolen…can we buy it and give it back to him?
While other children learn how to live, Paul has to learn how to die. Each day, little by little. Without knocking at his door, the End has smuggled in his room, among his toys, and did not leave anymore. It lives together with this 7 years old boy and steals every day another piece of his life. The day before yesterday it stole a step from him, today it steals his hopes, tomorrow his dreams that he will be able to run again.
And without being able to fight against it, Paul plays with the End. He already begins to see its face…He somehow found out that in short time he will not be able to see the trees, the sky and the sun except from a wheelchair. But nobody dares to tell him that after that, there will inevitably be Death. How should one explain to a 7 years old child that he has to say “good-bye” to everything he has ever loved in this world? How should one explain to him that there will be a day when he will hug his parents for the last time?! While other children learn how to live, Paul has to learn how to die…
Do you have the courage to change this End?
Accounts opened at RAIFFAISEN BANK
Gura Humorului Subsidiary
IBAN Codes
For Lei: RO52RZBR0000060004313435
For EURO RO46RZBR0000060004313446
SWIFT Code- RZBRROBU
Account owner
Any Ungureanu Mironov.
My story is like a novel
Any Ungureanu Mironov is 34 years old. She has been a great sportswoman and has won tens of medals, most of them gold medals. She cried for joy on the highest rank of the dais, when she heard the national anthem play for her. Then, after years, she gave birth to two beautiful children. And, as she thought her life was full and she could ask nothing more from God, she fell, defeated, before Him …
She was born in Gura Humorului, Suceava county and for a long time she did not knew what her life path should be. She discovered it when she was 17, when there came a commission from the Olimpia Bucharest Sports Club at the school where she was going. They were looking for young talenst for canoeing. “I did not know too much about this sport”, Any confesses, “but I loved water and I was a great fan of Sanda Toma, whom I had seen at the Moscow Olympics. When they selected me, I said “yes” from the bottom of my heart.”
She then entered the last year at the juniors section and in 1988 she became World Champion in canoeing. Naturally, she was selected for the Olympics team, where she stayed five years during which she obtained other tens of silver and bronze medals at the National Championships and over 30 medals, most of them of gold, at the International Regattas, with her team. Her only unfulfilled dream was the Olympics. In 1992 she was selected for the final Olympic team and she began to work hard for the performance. “When I thought I were a paddle’s length far from the Olympics, she says, the doctors discovered at a control disturbances of the heart rhythm. They could do nothing for me, I had to remain at home…”
The most valuable medal
A year later when her colleagues were glorious, Any gave up sports. And as there were not many things she could do besides sports, she found a job as office worker. But life was still gentle with her, because, instead of the medals for which she had so much fought, it gave her a soul mate. She met her husband Radu on water. He was then a sportsman within Steaua Bucharest Sports Club at the kayak-canoeing section and brought in marriage a greater dowry than hers: 14 gold medals at the National Championships and other 30 at the International Regattas.
But the dearest medal they had ever got was the birth of their son, Paul. “We wanted very much to have a child”, Any says. “Although we did not have a home of our own and we wanted to leave Bucharest. But we always postponed it and we stayed here. And Radu became non-commissioned officer within the Ministry of Domestic Affairs.” And in 4 years, the life gave them another reason for joy: the birth of a little girl, Ana Paula. They were the happiest persons on earth. At lest they thought so…
Life for sale
I first noticed that something is not right with Paul, when he was 4 years and a half. He wanted to be held in our arms more, once he fell without stumbling. We were at the Orthopedist and he gave us some unguents. After a few months, he made a blood analysis and we saw that he had very high transaminases. There followed months of controls and hospitalizations, but the doctors could not find out what he suffered of…We could see that the muscles on his feet were swollen, but we thought he inherited our athletic constitution, we did not think for a moment that there could be something severe. And finally we heard the verdict: progressive Duchene muscle dystrophy.”
She did not know anything about this illness; she thought it just a matter of time until she could get a treatment. But she found out that in Romania there are no solutions and also no goodwill from the authorities. She got the most pieces of information from the parents whose children suffered from the same illness. That is how she discovered the clinic in Kiev, National Medical University Cell Therapy Clinic, where experimental interventions are made with positive results for the muscle dystrophy. She asked for the help pf the Ministry of Health, but the commission’s result was tough: “he will not benefit of medical treatment outside the country. The mioblasts transfer is a still developing technique (in other countries) without a sure, proven benefit (in Romania)”. But the Kiev doctors guarantee the stopping of the illness evolution and have also proves through the children they have saved until now.
Any has not given up the fight. She corresponded by herself with the clinic in Ukraine and scheduled her child for a treatment. The therapy consists of three parts, at a time interval of 6 months each. The cost of the intervention is of Euro 33,000, which can be paid in three trances. In order that Paul should be treated, he would need at the beginning Euro 15,000. Out of which there are gathered by now Euro 7,000. “The first aid, of Euro 100 was given to us by an aunt who gave up a debt we should have paid to her. We got 1 Million Lei from the church. We still have a large sum to gather but most of the doors at which we knock for help, remain closed. God, I would sell my own life if somebody would pay for it!”
“I hold his hand”
Paul knows not much of what happens to him. He could not even understand it as long as he asks his mother “if God is good, why does it have to hurt me?” He goes to kineto-therapy for the muscles condition and one day as he returned from the doctor he sighed: “You know what? I will not complain anymore and I will go to gymnastics because I don’t want to use a wheelchair.” Somehow he had found out the terrible news. And he feels that it will be harder and harder for him. One day, the spoon with which he ate, seemed heavier to him, because his little arm was tired…”
His sister is 4 years old and knows that Paul is ill. And she wants to help him somehow. One day, she came suddenly to her mother to tell her a great secret: “You know, she said, God has given me a brother so that I should hold his hand and help him not to fall!” “I have to hold my child’s hand” Any says and cannot go on because of her tears. “My duty as a mother is to fight for my child’s life. But I feel like rowing against the stream, as in a last regatta that life is offering me…” In each regatta there has to be a team. Can you go further, knowing that for a child one step means suffering?
One penny for a step
Someone has stolen the steps from this child, while he was asleep. While he was still learning how to talk, while he was doing his best to crawl. And the thief still lies in wait for him, greedy and merciless. It is the first time that Paul’s story and his mother’s drama are published somewhere. Because he, as he might learn about this lines, should only find out as much as a child’s soul can carry inside…We, however, know how to read between the lines of a story and we can see the tough truth. Those of you who still think that saving a child is the most important mission in the world can bring their contribution for Paul in the accounts opened at Raiffeisen Bank, Gura Humorului subsidiary,
IBAN Codes
For Lei: RO52RZBR0000060004313435
For EURO RO46RZBR0000060004313446
SWIFT Code- RZBRROBU
Account owner
Any Ungureanu Mironov.
The disease
The progressive muscle dystrophies are the most frequent human genetic diseases. The Duchene miopathy or the severe form of PMD is the most common at children and is found in 2 children among 10,000. It is a disease of the muscles fibers, which, because of a progressive degeneration, leads to the atrophy of the muscles and to states of weakness and high motive incapacity. The disease is hereditary and affects only boys; it begins around the age of 4-5 years and the first symptoms include: difficulty of rising from the position with bent knees and much thickened pulps. The cause of the disease is still unknown but there is a treatment with the help of which its evolution can be slowed down. Due to a blood test, the disease can be discovered from the birth.
SPER CA E OK ACUM. DACA MAI ARE CINEVA TIMP SI CHEF MAI VERIFICATI O DATA SI DATI OK VA ROG.
MULTUMIM CELOR CARE SE IMPLICA
Madalina
madalina horsa spune:
Lorellay, acum am vorbit cu Ani, Paul face si presopunctura, in contul de lei mai intrasera 7 milioane, o sa verifice azi din nou si imi da soldurile finale in fiecare saptamana.
Madalina
lorelei_19 spune:
Alexandra, cu tine alaturi, sunt convinsa ca o sa reushim, un asemenea suflet ca al tau, nu se poate sa nu reusheasca. Esti o dulce si mereu muncesti, fara sa te dai in laturi de la nici un efort. Multzumesc din toata inima!
Madalina, sunt convinsa ca daca o sa continuam asha, avem sortzi de izbanda! Un aspect extrem de important e transparenta. Multzumesc si tzie pentru ajutor in numele parintilor lui Paul, in numele umanitatzii!
VA multzumesc tuturor ca sunteti alaturi de noi si Dumnezeu sa va binecuvinteze!
Am actualizat pagina, Alexandra, chiar te rog sa te uiti si sa verifici daca e ok. Multzumesc
Ana
Paul are nevoie de noi:
http://www.ana-design.ch/paul/paul.htm
lorelei_19 spune:
Alaturi va trimit emailul pe care l-am primit de la Any Mironov, mamica lui Paul cu data de azi, 17.10.04:
Este Duminica acum am reusit sa ajung la un internet-cafe.Sunt cu Ana si cu Paul dupa mine ei se joaca la calculatorul alaturat si eu incerc sa-ti scriu cateva randuri. Am primit o multime de telefoane zilele astea de la diverse persoane care incercau sa ne ajute. Am mai prins curaj. Multe persoane au auzit de tot felul de bioterapii, chiar ieri am luat legatura cu cineva care face presopunctura si o sa incercam o terapie si acolo. Pana in prezent el a facut si reflexoterapie o perioada. Chiar daca nu il pot ajuta direct pt boala lui toate terapiile astea cel putin ajuta la dezintoxicarea organismului si cine stie.... merita incercat. Imi pare rau ca a trebuit sa intrerupem si inotul dar pane ne acomodam cu drumurile la scoala mai dureaza un pic. Dupa ce o sa reluam inotul Paul vrea sa invete sah si poate o sa reusim sa luam cateva lectii la Palatul Copiilor. Ma bucur ca este nerabdator sa mearga la scoala, dar cu toate astea se bucura mult si de timpul liber si face tot felul de planuri pentru sfarsitul de saptamana. Ma intreaba "mama sa-mi spui din timp unde avem de mers ca sa stiu ce pot face in timpul liber".
Sa trecem la partea financiara:
-contul in lei la data de 30.09.2004 = 31.400.000 lei
14.10.2004= 37.197.370 lei
-contul in euro nu s-a modificat avem tot 103 euro
Mai avem contul din Bucuresti unde mai avem apoximativ 900 euro.
Cam asa sta situatia. Mai am o promisiune de 1000 euro in decembrie. Mai sunt 2 luni si mai avem nevoie de 15.000 euro. Ce pot sa mai spun. Am nevoie de o minune. Ceea ce am vrut sa spun este ca totul se poate shimba in rau in doar 30 minute, cam atat am stat in cabinetul D-nei Lidia Fecioru. De fapt diagnosticul a fost pus in 5 minute. Doar 5 minute in care viata nu mai avea nici un sens, si nu mai intelegeam nimic. De ce Paul, ce am facut atat de rau, cu ce l-am suparat atat de rau pe Dumnezeu, Paul este doar un ingeras. In timp am inteles, asa este viata..... De obicei cand ne mergem bine nu ne intrebam "de ce eu?" . Vedeam ca alti aveau probleme foarte mari, ajutam daca puteam dar nu ma gandeam cu adevarat ca as putea fi in locul lor. Acum stiu ce inseamna, si as vrea ca nimeni niciodata sa nu treaca prin asa o situatie. Am multe de invatat de la Paul, se bucura de orice lucru bun care i se intampla si accepta si greul ce il are de dus. Sper ca vor venii si cele 5 minute care vor shimba soarta copilului meu.
Va multumesc tuturor si va doresc tot binele din lume.
In fiecare vineri o sa va transmit situatia conturilor.
Paul are nevoie de noi:
http://www.ana-design.ch/paul/paul.htm
anangel_lexi spune:
Madalina, multumesc ca ai facut tu modificarile. Eu in week-end n-am acces la net...
Alexandra
Sometimes I still lose my mind/ when life is cruel and unkind/ but it's when I suffer that I learn/in a repenting heart love will burn/oh I'm/ thanking blessed Mary for light divine
madalina horsa spune:
Vai Lore, mi-ai rupt sufletul.
Nu vroiam sa scriu, dar uite, am promisiuni pentru saptamana asta de vreo 10-12 milioane de la sefii de filiale de la firma mea. Si am inceput sa ma gandesc ca daca numai eu am reusit pana acum ( ii pun si pe aia promisi la socoteala) sa strang aproape 500 dolari, daca am da fiecare de pe forum 10 dolari am strange o suma, nu?
Fetelor, dar asa se misca greu, banii vin cu tzaraita, chiar nu mai are nimeni nici o idee mai "babana"? Ziare, sponsorizari etc?
Uite, daca strangem banii, eu va invit la nunta lui Paul pe cheltuiala mea pe toti ( fetele din diaspora...mila cu biletele de avion va rog:)). Ca sigur despre copii va mai face mult bine pana atunci si de mine nu scapati usor.
Cele mai vechi pe forum, unde ati mai cerut in alte cazuri? La cine ati mai apelat?
Asteptam adresele din cartile de vizita ale sefului....scuze, am uitat cine postase asta cu cartile de vizita
Hai sa fim sanatosi!
Mada
lorelei_19 spune:
Madalina, esti o bomboana de fata 
Paul are nevoie de noi:
http://www.ana-design.ch/paul/paul.htm
anangel_lexi spune:
Of, Doamne, mi-au dat lacrimile citind ceea ce a scris mama lui Paul. Atat de mult as vrea sa pot sa-i ajut si eu financiar! Ma rog ca intr-o buna zi, pana sa plece Paul la al doilea tratament, sa pot contribui si eu cu ceva!!! Pana atunci multa sanatate si curaj, caci...minuni se intampla!
Sometimes I still lose my mind/ when life is cruel and unkind/ but it's when I suffer that I learn/in a repenting heart love will burn/oh I'm/ thanking blessed Mary for light divine