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Raspunsuri - Pagina 3
Adi4U spune:
Am facut rost de tomografie, o am atat in format digital (60MB) cat si ca tomografii, pe film de la tipografie la mare rezolutie.
Lia spune:
lumbosacral meningocele
meningitis suspect
acute sepsis due to Pseudomonas
tracheostomy(metalic trach tube)
Internal Non-Communicating Hydrocephalus
Posibility of Periventricular Diffusion Edema,visible frontal,bilateral
Grade IV Hydrocephalus
Dandy Walker Syndrome
nystagmus(jerky movements of the eyes)?
daca-i vorba despre "papila",aceasta-i "papillae".daca-i vorba despre "pupila",e "pupil"
synuous veins
Nu-s convinsa de corectitudinea traducerii "privirii in apus de soare" si "papile plane decolate".
Multa sanatate lui Mihai si numai bine va doresc!
Adi4U spune:
Am pus tomografiile lui Mihai la adresa http://hidrocefalie.3x.ro. Va rog ca impreuna cu mine sa o trimitem la cit mai multe clinici, impreuna cu citeva cuvinte, pentru a vedea daca Mihai este operabil.
P.S.
Astazi a facut primul stop respirator.
Adi4U spune:
Am trimis prin e-mail diagnosticele si tomografia in Germania la Munchen la spitalul universitar (Prof.Dr.Univ. Vladimir Olteanu Nerbe) si astept raspunsul lui Alyssa de la Spitalul din Toronto.
Adi4U spune:
Am mai trimis la:
GHRF2618@aol.com, info@hydroassoc.org, hydrodb@earthlink.net, askus@marchofdimes.com, hydrobrat@earthlink.net, orphan@rarediseases.org, staff@navh.org, murat_yil@yahoo.com, info@nyneurosurgery.org, raysa@itsa.ucsf.edu, schern@surgery.ucsf.edu, craig.lubbock@ncal.kaiperm.org, mkosidoy0991@rogers.com, friendsofalyn@btopenworld.com, symons@clara.net, kenmowbray@aol.com, m.raberpr@mielmode.nl, jkoerfer@emotions.ch, lgrimm@jhmi.edu, webmaster@childhealthmonitor.org, haroldsm@BJC.org, jdyoung@clarian.org, kbarbiero@chsnj.org,gis-info@gis.mgh.harvard.edu,public.affairs@act.gov.au, enquiry@albury.ramsayhealth.com.au,mayo@midcoast.com.au, neurosurgery.education@tch.harvard.edu, questions@neurosurgery-associates.com, webmaster@tchden.org,info@mch.com, nitin.patel@neurosurgery.uk.net,RADONC-KNIFE@MEDCTR.OSU.EDU, questions@neurosurgery-associates.com, rabbott@bethisraelny.org, rodrigor@cencar.udg.mx,info@1cns.org, fh2nch@iam.net.ma, mrakows@lumc.edu, LauraHitchcock@UCHSC.edu, ahaves@wfubmc.edu,dgnc2004@porstmann-kongresse.de, info@come2vienna.org,aansam@aans.org,pawslab@slu.edu, tobinm@ccf.org,kailairajan@eth.net,geneevans@erols.com, beatrijs.janssens@uzgent.be,dediviti@unina.it,oertelj@freenet.de, neuroradiologie@dmr.usz.ch,jkisiel@buffns.org,epm@aans.org, idkd@congressorg.ch,ocme@ucsd.edu,epm@aans.org,yolich@msn.com, bschell@asnr.org,gbejjani@waln.org,paul.summers@usz.ch, lms@aans.org,office@cirse.org,etimurkaynak@gata.edu.tr, tobinm@ccf.org,vasospaz@aol.com
Mesajul a fost:
My nane is Tudose Adrian and I am the father of Tudose Mihai George.
My child has been born on 10 nov. 2003. Since that date he is sick. The following rows are a list of my child diseases (diagnostics):
- lumbosacral meningocele
- meningitis suspect (not confirmed) but acute sepsis due to Pseudomonas
- tracheostomy (metalic trach tube)
- Internal Non-Communicating Hydrocephalus
- Posibility of Periventricular Diffusion Edema,visible frontal,bilateral
- Grade IV Hydrocephalus
- Dandy Walker Syndrome
If you know a partial cure or a solution for our child diseases please send a email to us at: t_v_adi@yahoo.com, parasutisti@acttm.ro
The full tomography is posted at http://hidrocefalie.3x.ro.
Daca aveti sugestii sau vreti sa trimiteti si voi sunteti bineveniti si "Dumnezeu sa va binecuvinteze!"
Alyssa spune:
Adi, la unele din adresele de mail de mai sus am trimis si eu mesaj alaltaieri cam tot in acelasi format. Inca nu am primit raspuns de la nici unul din ei.
De la Hospital for Sich Children m-au sunat astazi si m-au intrebat despre Mihai si despre diagnosticul lui. Apoi m-au intrebat daca parintii au fonduri pentru a suporta cheltuielile si le-am spus ca nu. Mi-au spus de fondurile lor "Herbie" si mi-au spus ca imi trimit formularele in 24 de ore care trebuiesc completate si inapoiate la ei in birou in 2 saptamini. Apoi expertii vor vedea diagnosticul si ce se poate face si se vor cere mai multe detalii. Iar apoi isi vor exprima parerea daca este operabil aici sau nu.
Cum imi trimit formularele am sa ti le faxez. Te rog da-mi un numar de fax.
In timpul zilei sint la munca si nu am access la internet, asa ca imi poti trimite e-mail la alice.capitan@realstar.ca
In felul acesta comunicam mai repede.
Sper sa iti dau vesti bune si in continuare.
Alice
Adi4U spune:
Sehr geehrter Herr Tudose,
vielen Dank für die Zusendung der Unterlagen Ihres Sohnes Mihai.
Die Unterlagen habe ich bereits Frau Dr. Peraud, die zuständig für die pädiatrische Neurochirurgie ist, weitergeleitet. Wie Ihnen telefonisch bereits mitgeteilt, werden die Säuglinge grundsätzlich in die Klinik für Pädiatrie aufgenommen. Frau Dr. Peraud (e-mail Aurelia.Peraud@med.uni-muenchen.de) wird nach Rücksprache mit den Pädiatern Ihnen Informationen über die Möglichkeiten der Behandlung sowie über die anfallenden Kosten zusenden.
Grundsätzlich ist zu sagen, daß technisch sowohl die Behandlung des Hydrocephalus als auch die der Meningocele möglich ist. In Anbetracht der massiven Ventrikelerweiterung kann jedoch über die spätere psychomotorische Entwicklung Ihres Sohnes Mihai keine genaue Aussage gemacht werden.
Mit freundlichen Grüßen
Prof. Dr. V. Olteanu-Nerbe
(Ltd. Oberarzt der Klinik)
Adi4U spune:
Dear Mr. Tudose,
thank you for the forwarding of the documents of its son Mihai. The documents I already passed Mrs. on Dr. Peraud, who is responsible for the paediatrische neurosurgery. As you by telephone already communicated, the babies are accepted in principle to the hospital for Paediatrie. Mrs. Dr. Peraud (email Aurelia.Peraud@med.uni muenchen.de) will send you information about the possibilities of the treatment as well as about the resulting costs after consultation with the Paediatern. Fundamental it is to be said that technically both the treatment of the Hydrocephalus and those is the Meningocele possible. Considering the substantial ventricle extension however Mihai an exact statement cannot be made over the later psychomotor development of your son. Yours sincerely Professor Dr. V. Olteanu Olteanu-Nerbe (Ltd. upper physician of the hospital)
Adi4U spune:
Dear Mr. Tudose,
I am writing you on behalf of your child Mihai. I was informed by Prof. Olteanu-Nerbe about the clinical history, and that you want her to come to Munich for further medical advice and treatment. As I also heard you are arranging financial funding. Would you please tell me whether you want to come with your child and than I can talk to the financial department at our hospital how much you would have to provide.
With best regards
Dr. A. Peraud
Adi4U spune:
Stimate Domn,
Am citit documentul Dumneavastra si m-am uitat la CT. In primul rand, sunt convins ca veti primi mai multe opinii.
Bazat in principal pe CT: copilul sufera in mod clar de hidrocefalie necomunicanta. Nu este nici o evidenta de Sindrom Dandy Walker pe acest CT.
D.S, MD
Clinical Neurophysiology Fellow
Neurology Dept. New York University